iBIO invites you to join patients, families, caregivers and other rare disease community members at this important event to educate Illinois legislators and the general public on the challenges faced by rare disease patients and their families.
Illinois Rare Disease Day at the capital brings together rare disease advocates from across the state to make their voices heard by their Illinois elected officials. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Illinois state elected officials.
No matter one’s connection to rare disease or their advocacy experience level, all are welcome.
