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february, 2021

26feb12:00 PM2:00 PMIllinois Rare Disease Day Virtual Event

Event Details

Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Illinois legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the Illinois Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.

REGISTER HERE

Time

(Friday) 12:00 PM - 2:00 PM Central

Location

Virtual

Organizer

NORDIL Rare Action Network

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